Purpose for pain 

Hello again everyone❤️I hope you’re all doing lovely and life is treating ya decently😋

It’s time to pet those adorable puppies again and put on your favorite ball gown (or in my case sweatpants) because it’s another slightly sad blog post. Sorry in advance😬

I’ve broke down so much these last couple of weeks that I’ve lost count. The tears have been so many I’m surprised I even have eyes left from all the crying I’ve done. The pain has been so bad, and the stress of school hasn’t made it easy. I want so badly to be normal. I want to not have to deal with all this pain. Most of all I just want this sickness to end, I want my life back. I’m sixteen years old, I want to hang out with my friends, have fun high school adventures, live life as a normal teenager. Most days I haven’t even left my bed from the pain. It’s terrible to say the least. 

God gives us so many inspiring verses to help us with pain and suffering, I look over them and I know that god loves me and is here for me through the bad. I’ve just begun to hit the limit with the pain, I’m so over it. I want more than anything to give up, just let the pain win. 

As I said, I’ve broke down and cried my eyes out so much this week, but the worst break down occurred last night. Sometimes I let the darkness of depression in and let the pain overtake me and my emotions to the point of just thinking that dying will be my only pain relief. It terrifies me that I think that. I don’t want that, ever. Wanting my pain to end in that way, will only pass the pain on to my family and friends. I know God has plans for me and has put this pain in my life for a reason. No matter how badly I want to give up, or think that dying is my only pain relief, I just have to keep going. 

My prince had to remind me of this last night. Through the tears and the pain he comforted me with words of hope and encouragement, giving me verses to think of and helping me not give up. I love my sweet prince so much, he is truly a god sent to me. 

Through the pain, he just held me and wiped the tears away and we prayed together. I had said to him through my sobs how everything was falling apart that it was becoming so overwhelming. 

“Don’t think of it as falling apart but tearing down to rebuild something better.” He had said to me and it had begun to ease my overwhelming thoughts. “God gave you the hardships that you’re facing for a reason because he knows you’re strong enough to conquer them. God will always be with you. You are strong.”

He gave me so many good words of encouragement, I can’t thank him enough. It made me realize many things. 

I know God has a purpose for the pain, even when the pain gets so overwhelming and I think he has abandoned me, God is always here. 

Philippians’s 1:29~ your pain has a purpose

Isaiah 41:10-13~ don’t panic, I am with you. There’s no need to fear, I will give you strength. I will help you. I, your God, have a firm grip on you and I’m not letting go. 

No matter how bad life beats you up, no matter how much the pain takes over, God has got this, he will fight for you and take care of you. He gave you this struggle because he knows you’re so strong and you will win the battle. 

Romans 8:18~ what we suffer now is nothing compared to the glory he will reveal to us later. 

You got this you lovely princesses/princes. We got this. It does get hard, you do break down and cry your eyes out, but no matter what you keep fighting and don’t give up. So put on those gorgeous ball gowns (or sweatpants!) and that crown of yours, and keep fighting. 

I keep reminding  myself through the pain that God can heal me, and he has a purpose for the pain. 

Exodus 15:26~ I am the god that heals you. 

Keep fighting. Don’t give up. You got this. We got this. 

Love,

Princess Affliction 

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💖Giving Up💖

Hey lovelies💖

Sorry it’s been so long! Life has been an even crazier roller coaster than usual. 

 The school year is kicking off and just doing my best to get through it. It’s only the third week of school and I’m already dropping three classes because I’ve been too sick to make it to them😂 I’m noticing more and more how hard all of this is becoming. I’m a sixteen, almost seventeen, year old girl who barely has a life because of sickness. I want to make it to school, hang out with friends, be apart of social activities, but more and more it’s getting hard to leave my bed let alone be able to have adventures with friends. It’s hard to say the least. 

Each day is different, some days I can’t bare to move, others I’m out and about getting stuff done with a small feeling of normalcy. The days that are hard are when it starts to feel like the walls are caving in. I want my life back, I want myself back. How can I have a life when I can’t even get out of bed? Even on the days I feel like I’m dying from the intense pain, I will still try to do stuff because if I don’t I know I will slip back into that little dark spot of sadness and depression. 

So on goes the crown, the mascara, and the lip stick! Hey, I mean, I’m a mess but at least I’ll be the prettiest mess you’ve ever seen!😋

I’m sure everyone knows what it feels like to just want to give up, even if you’re not living with chronic pain and illness. Life can get hard, and sometimes it just seems better to give up than to try. I understand completely. I’m here to tell you, it is good to give up certain things. You maybe asking, “why in the world would she give the advice to give up?!” I’m saying, it’s good to give up certain things. Things like, that self doubt, that mind of yours that tells you you have to be perfect, that little voice that says you’re not good enough. For me, I’m trying to learn and give up the need of feeling like I have to push myself to please others around me. I try to please and help others because for me, I want others to be happy and not worry or wonder how sick I am. I am sick, and I know I’m sick. I don’t need to please others around me and convince them I’m sick. Overall, don’t give up, just give up those things that make you want to give up. 

God tells us to “be strong and courageous.” In Joshua 1:9. You are strong and you are amazing and god will always love you. So be strong and courageous even when you feel like you can’t, and don’t give up. You are an incredibly wonderful and beautiful/handsome princess/prince. You are strong and courageous and you can’t do anything!

I’ll talk to you guys again soon! Keep staying strong and amazing like I know all of you are😋

Love,

Princess Affliction 

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💚The pain of invisibility💚

You put on that stunning ball gown, your incredible jewelry, your favorite crown, and that beautiful smile of yours. Why do you do this? Why do I do this? Why do we do this? Because the pain we feel is unseen and invisible to people unaware of the trails of chronic pain, so we do our best to push through. By putting on our favorite crown, or the amazing ball gown we love, we are trying the best we can to feel normal in the world of hurt we live in. 

With an invisible illness, every day is a battle in many ways. You fight to look or seem alright, you fight to keep living the life you want, you fight to explain to people just the pain you are in, you fight against the invisibility, you just fight. 

I may seem okay, we may seem okay, but if you look closer, if you really search us, you can see the pin is washing over us like a mighty wave of an ocean during a storm. You may not see my pain and illness, but that doesn’t mean it’s not there. It is always there, causing much affliction. 

Just because some people can’t see your illness, or find that your in pain, or know a logical diagnosis doesn’t mean it isn’t there. One of the cruelest things of living with chronic pain is people or doctors don’t believe in you because they can’t see your pain. Sure we don’t look sick, but that may mean that we are having a day where we have to fight the hardest against the pain. 

“But you don’t look sick.”

“You look so good! Are you out of pain?”

“You seem fine.”

Not everyone out there is going to understand the hardship of living with chronic pain and invisible illness, the ones that do and believe in you are the blessed angels. Having an invisible illness means we’re sick and We’re always in constant pain, but still, we put on our crown, the immaculate ball gown and a smile, because fighting against pain is better than dwelling on it. 

The pain we’re enduring may not be seen, but that doesn’t mean we’re not doing our best to fight. 

Your pain matters, even if it can’t be seen and nobody believes you. The way you feel matters. 

So no matter what, however anyone thinks of your invisible illness, keep being strong. Wear that crown, that beautiful ball gown, and your endearing smile, even if you’re in too much pain to bear and no one believes you. You are you, your pain does not define you, and neither does other people’s opinion on your pain. 

You are strong. 

Love always,

Princess Affliction 

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Those special angels God gives you😇

So let me just tell you lovely people a little tidbit about me if you don’t mind😋

I absolutely looooooovvvvveeee to write. It may not be my strong suit, but it definitely helps me cope with pain and emotions. 

I started writing back when I was ten, after seeing my first broadway show, Wicked. (And I totally recommend seeing that to anyone. It’s AMAZING.) I would rewrite my favorite parts of the skit, have my best friend perform with me, turn my bedroom into a “stage and theater”(with the bed being the stage), and let the imagination run wild. It was so fun. 

Now thanks to dear, innocent, little me in love with plays and writing, I have grown to love writing more than I ever thought I could. 

But lemme dive a little deeper in the matter, if you don’t mind of course!

The only reason I have grown to love writing this much, and literally grown as a young lady in general, is because of one heaven sent angel who somehow was able to put up with me for seven years😂 she is, and always will be, one of my absolute favorite teachers. She taught me how to be strong, write with my heart, love with my whole being, and even taught me math when I didn’t want anything to do with it😋 I kid you not, she was a God sent angel. 

I say all of this, and tell you about this amazing lady, because she is one of the major role models in my life who is able to help me cope with pain and grief. Even little 3rd grader me was crumbling under the weight of grief and sorrow and pain, but she knew how to help and make it all better. She has helped shape me into the strong person I am today. I really couldn’t thank her enough. Especially since I was that one little girl who was extremely difficult😂

There are people in your life sent to help you. I believe God sends us people to help in this crazy life path. And the people he gives you are absolutely amazing when you find them. I couldn’t be the person I was today without this lovely teacher who grew into a second mom to me. Those people will always have a special place in your heart, and you can never forget them and all their spectacularness (yes I just made that a word.)

Thank you for letting me share a little more about me. You guys are all amazing. Don’t ever forget it either. Love you all. 

Princess Affliction💖💖💖

Finding sleep without the sleeping curse😋😴

Alas, if only I could be Sleeping Beauty. That would be the only way I would get some actual sleep, by being put under a sleeping curse. Was it really a curse she was put under? I mean, I think sleeping for an endless amount of time sounds pretty amazing! But anyways, back to my real point!😋

I have a major trouble with sleeping. We’re definitely not bff’s that’s for sure. Some nights I will get a blessed 8 hours of sleep, but most nights I run off of 0-3 hours of sleep. 

Not good. 

Then I find myself struggling throughout my day. As if dealing with chronic pain and Lyme disease isn’t enough, I’m trying to run off of only a couple hours of sleep most days. It can be exhausting to say the least. 

Now many of you I’m sure can feel my pain. Dealing with chronic pain or any illness can affect the way you sleep, as it causes your body and mind to stress out, leading to less sleep. Like me, you may be simply exhausted all the time, but still can’t find sleep. 

Trust me, sometimes I wish I could be sleeping beauty just so I could get some decent sleep for once. 

One of the reasons I can never find sleep is because I’m in so much pain or I am stressing myself out way to much by overthinking life. Here are some of my princess ways that I use that I’ve found to work in helping me get some restful sleep at night.💖 (don’t worry, there is no sleeping curse on here as the ways that help me sleep😋)

💖Many doctors have told me not to nap at all during the day, as that can rob you from sleeping at night. While that may be true, sometimes you just need to sleep throughout the day. I take naps as a way to ease my pain, by only taking little cat naps in hour intervals. This way I’m still getting rest, but I’m not robbing my body of the sleep it needs to get at night. 

💖Bubble baths are bae. I mean it! Bubble baths are one of my favorite things, as it can help to ease my pain and relax my body. It’s nice to fill up the tub with that fruity smelling bubbles and relax in that warm water. I put 8-10 drops of lavender essential oil in the water to help me relax better too. Lavender is a great way to ease your mind and release stress. 

💖warm tea or hot milk are good remedies to try as well. I like to drink warm milk with a little bit of honey and almond extract to help relax my body. Tea can be a good drink as well, especially with the different kinds you can buy nowadays that help with sleep. Peppermint and chamomile are two of my favorites, as the ease my mind and make me feel a little sleepy. 

💖melatonin can also be a good thing to try as it’s all natural. Though this didn’t work as well for me. I would take melatonin tablets at night to help but found it gave me no sleep. I tried the gummy version and that proved to be more effective. 

💖yoga can help in releasing stress as well. You can do it 15 minuets before climbing into bed and help ease your mind into getting it to sleep. 

💖 listen to music or white noise. Depending on what you prefer, sometimes you just need sounds to get you to sleep. Wether that be music or even just the sound of a fan, sometimes it really can help. I like to listen to the rain when I try to sleep, and some amazing person created an app just for that! Rain Rain is the app I love to use when I can’t sleep and want to listen to the rain. It really helps ease my mind and lull me to sleep. 

💖making your room dark as possible is good as well, as it tells your brain that it’s time to sleep. If your like me, sometimes you’re just afraid of the dark! A small night light is good, as long as it’s something dim and not to bright. 

These are just a few simple ways I have found that have helped me in finding sleep. It can be hard when your body deals with so much pain and illness when you can’t find sleep. You may be exhausted but sleep still isn’t your friend. Illness can wreak havoc on your life, depriving you of your sleep is sadly a part of that too. I hope that these ways help you find some restful sleep, without having to search for a sleeping curse. 

I would love to hear the ways that help you fall asleep at night! Comment below! I’m always down for trying new things that help with rest because let’s face it, sleep is pretty great when you can find it.😉

Love you all you princesses,

Princess Affliction 

💖brokenness💖

I’ve traded in my ballgowns this week for sweatpants and hoodies! Wellllll, that may be my every day look😬 can you blame me for my undying love for comfy clothes when I’m sick?! I mean seriously, have you ever just cuddled in a big hoddie, held your teddy bear, ate some chocolate and watched a Disney movie? Legit, the best thing EVER. 

With the weeks that have come, somehow I keep getting worse. When I think I’ve finally hit rock bottom, and the pain can’t possibly get any worse, it pulls out the shovel and digs a deeper hole for me. 

Yeah, not fun. 

With all of you who experience chronic pain, I’m sure y’all can feel me. You think it possibly can’t get any worse, then life is like, “surprise! Here’s a double dose of pain today! Good luck honey bunny!” 

Yeah, not fun at all. 

You might not even be experiencing chronic pain and you can feel me. we all have our things in life that gives us pain. Family issues, health, grief, sadness. There is an endless amount of pain found in things in this life. We are all broken in someway. 

Something someone said to me has really stuck with me because it’s so true. She said, “just take this remote for example.” She held the remote as she played with it. “It’s not broken right? There’s nothing I can fix about it.”

I nodded to her utterly confused, wondering what in the heckle she was leading to talking about a remote. 

“But if I throw it across the room, then it will be broken.”

Why would you want to throw it across the room?! I questioned her odd antics. 

“Sometimes God puts us in tough situations, gives us hard trials, to fix us. We all can become broken and hurt over the trials of life. But that’s how God turns it into beauty.”

Her words really meant a lot to me, because its true that life will give you trials that will break you, but god allows that so that he can fix you and make you into something more exquisite than you can ever imagine. 

Isaiah 66:9 

I will not cause pain without something new to be born, says the lord. 

Philippians 1:28

There is purpose for your pain. 

No matter what life throws at you, no matter what trials you face, how broken you become, God will always be there for you and make you whole. He is taking your broken pieces and turning them into a beautiful mosaic masterpiece. So keep your crown high, and know that no matter how broken you feel, God will always be there for you. He is creating something exquisite from the calamity. 

You got this lovely princesses and princes! Keep being strong, rocking those ball gowns (or sweatpants and hoodies😋) and tiaras, and keep those loving hearts of yours amazing. 

Love,

💖Princess Affliction💖

💖Hi lovelies!💖

I hope all of you princess and princes are doing well today! Just thought I’d drop in and say hi and remind you that you all are beautiful and strong princesses and princes. And don’t you forget it! So today, just take it easy, relax, maybe have a diy spa day, or just take a nap! I also highly recommend watching a Disney movie. Very fun indeed. Or just pet your puppy and fall asleep, that also sounds amazing. Have a wonderful day lovelies!

Love,

Princess Affliction 

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Anxiety 

Serious story time! And by serious, I mean like, put down your crown and maybe just pet your puppy because it’s about to get kinda sad.😬 I’ll just apologize ahead of time for the depth of melancholy I’m about to explain to you. 

So I’ve been sick with Lyme disease suspectedly (yes I made suspectedly a word) since I was young, like maybe 5 or 6 years old. And with being sick all the time comes with amazing benefits such as anxiety, depression, etc. And I say that last line as sarcastically as I can because in all reality it’s awful to be sick all the time and get the added bonus of getting anxiety and depression. 
I have been dealing with anxiety practically my whole life, which is really crazy when I think about it because you can’t imagine a four year old getting anxiety, but really that was the age it all started for me. I lost a loved one at the age of three, the day before my fourth birthday. I was there as I watched death do it’s work in front of my eyes. As a four year old, you don’t know how to explain the experience of watching death, so for me I enternalized my emotions of the traumatic event. I kept those emotions internalized until I was nearly eight years old as I watched death take hold of another loved one. It was hard, I was still only a kid yet I knew death so well already. I never really understood it, or how God and heaven worked, death was just like this ambiguous figure that kept taking people I loved.

 My anxiety didn’t really begin to surface though until I was asked to constantly describe and relive those moments where I watched death take hold of my loved ones. I started counseling when I was eight, and though I will always love and adore the woman who was my counselor, she only scratched the surface of my death experiences. Sometimes people think the only way to get over the problem or the fear is to talk it out, for me that wasn’t really the case. Constantly having to describe the times I saw death take hold of those I loved got exhausting emotionally. Living it once was more than enough, I watch the memories flash through my head too many times to count, why make me explain them aloud? It was so much for my little eight year old mind. It became so bad that I began getting anxiety attacks in school. I didn’t even want to leave my room, my parents would have to bribe me to go to school. So now the majority of my memories from second grade are of constantly being in the nurses office hyperventilating and having breakdowns. Well, I do have some fond memories of playing with my little ponies at rescess, but I can get into the fun my little pony details another time.😉 

Anxiety is a difficult connotation. Describing what it’s like, is like describing colors to a blind person, nearly impossible. Everyone experiences anxiety differently. For me, my anxiety is like my shadow. It may not always be seen but it’s apart of me and follows me wherever I go. Anything can set off a panic attack, and the hardest part is trying to keep the pain  and fear from surfacing within my eyes and having a complete breakdown in front of my friends or family. I will over analyze quite a lot. Such as, what people say, my actions, a school test, or even the silly little things like how someone is looking at me. It can be a terrible shadow to have following you around, as it whispers little lies and nothings into your ears. It is exhausting.

It is sadly true that even princesses can have their dark shadows full of fear and doubt. 

For me, all I can do is polish my crown and place it high on my head once more and carry on with my head high as best as I can manage. Ive come to realize that not all days are going to be good. Some days are going to be filled with more fear and anxiety than some, and though that takes a lot of getting used to, it’s okay that this happens. There will be happy days and bad days, days that make you cry, and days that make you double over in laughter. There will always be good and bad. And that’s ok. It’s learning to find the good in the bad and balancing it.  

My anxiety will always be around, so it’s learning to tame the beast. It can be exhausting, and depressing but I know I will come out a stronger and better girl because of it. Having anxiety can be like running a marathon, tough and extremely tiring, but in the end you will become stronger than you ever thought you cold be because you endured the hard ships with such grace. 

Sometimes you have to take care of your self and not care about what other people may think about you being sick all the time. This can be a hard pill to swallow, it was for me because all I want is to be there and help people all the time in whatever way I can, but how can I do that when I’m constantly fighting my sickness? I know I have to realize that I’m not always going to be able to be there for everyone, as much as I want to, because I have to take care of myself too and win my battle. 

Because I know I can make it through any battle. 

And so can you. 

You can conquer any battle you warrior princess or prince! You are strong. More strong than you give yourself credit for. 

So keep conquering those battles, keep wining those wars, keep slaying your dragon, and keep that crown held high on your head. You are beautiful and lovely. 

Love Always,

Princess Affliction 

💖A Little More About Me💖

So if all you amazing princesses and princes aren’t tired of me yet, I would like to share a little bit more about my self! Cue the introduction to my weird quirks and crazy habits, along with my funny obsessions and silly traits. Grab those crowns of yours, cause it’s story time once again!

So I’m a 16 year old princess, and if you haven’t read my WHO IS PRINCESS AFFLICTION page I’ll just tell you now that sadly I’m not a real princess. I know, shocking right? Believe me though, if I could have one wish, it would be to become a legitimate princess, or maybe even a Disney princess. They’re pretty spectacular. But getting back onto my weird quirks, because let’s face it, we all have that funny little thing we have or do. One of my odd things, is my deep love and desire for deserts, but not just any desert, I absolutely love chocolate cake. Like adore it. I know, I know, silly huh? But I promise you this, there’s a lot more to me than a deep love for cake and fighting chronic pain and if you are still sticking around and reading this, I would like to tell you a little bit more about me. 💖💖💖

I am a girl who loves and adores God. In my 16 years of life, I have been through quite a bit, and God has been with me through it all. There have been a good many trials in my life, like we all face in our lives, and I have found that no matter how hard life becomes to handle or even if I am completely falling apart, I know God is with me because he loves me and knew my name even when I was just a star under his sky. And a God who can love you so deeply before you are even in existence is a God worth fighting for and loving in return.

So now that I told you the important things like my deep love for God and my deep love for chocolate cake, I’ll tell you some more silly little things about me!

I absolutely adore dogs, puppies to be exact, but really I would take ANY dog. My favorite right now is a Maltipoo. Seriously, google it! They are the cutest.

The days I am feeling good, when the migraine isn’t keeping me in bed, I like to walk around my small town. But it’s not really walking, I mostly skip or balance on the curb like I’m a gymnast on the beam!

I am the WORST at math, anyone could tell you that. But where I lack in math I make up in art. I love performing arts and plan to major with that in college along with minor in writing. I was a competitive dancer before illness took over my life. I loved to dance, but I felt God was telling me to find a new passion, so now the arts I do are drawing, acting, writing, and singing.

The ocean is one of my favorite things about the earth, along with the sunset. The amazing and strong waves of the sea always captivate me and the vibrant colors of the sunset always dazzle me.

I love light houses. I really love anything vintage and antique, but lighthouses are an amazing lost vintage pastime.

Snap dragons are my favorite flower, with cherry blossoms as a second, then yellow daisy’s and lilacs. I think flowers are the coolest things, I love their vibrant colors and amazing smell. I feel like we are truly blessed to have such beautiful things on earth.

I always try to look on the bright side. I have been really sick the last couple of days, to the point where I couldn’t leave my bed, but to me, if I look on the bright side, I may be in bed unable to move but at least then I get time to talk to all of you amazing princesses and princes! life will always try and knock you down. So you look at the positive, pick your self up, dust off your crown, and carry on.

I love old movies! Especially Singin’ In The Rain. But I also love any movies with Audrey Hepburn or Grace Kelly, those two were queens.

The rain is my favorite, but thunder and lightning scare me.

I hate bananas. Ew. Sorry banana lovers.

Disney has ran in my blood since I was born I’m sure, going back to wishing I was a disney princess. I hope to go to college on the west coast, close to Anaheim just to hopefully work at Disney Land.

I love turtles. They’re so cool!

I am a definite daydreamer.

I believe in love and kindness, even to those who don’t give it to you in return.

I love to cuddle with stuffed animals. I just love stuffed animals in general. I have a life sized stuffed teddy bear named Christmas that I cuddle with when I’m sad.

I have a love for Italian food, but I have German ancestry… I don’t like really any German food my family makes.

I believe in family and the importance of sticking together.

I know everyone has strength and love inside their heart, even if they feel as if they don’t. They could have just lost it along the road of life. All it takes is to rediscover what makes you strong, and pursue what you love. Everyone holds strength within themselves, but love makes the path clear.

This is just a little bit more about me. I know this is only a small portion of all the silly quirks and crazy habits I have, but I hope you’re enjoying getting to know me little by little as I am enjoying getting to know all of you and your epic battle stories.

I am fighting a battle but the only thing that this battle will change about me is the love I have for God, and the love I have for all of you. Battles can either break you or make you into something beautiful, it’s all in how you choose to fight. So please, keep fighting my brave warrior princesses and princes. You are all beautiful and strong.

Love,

Princess Affliction

💖Beginning Princess Affliction💖

Okay, so I have to tell you, I’m so excited to get this blog and my social media pages up for Princess Affliction! Let me just tell you a little story. So before I begin, get that nice warm cup of tea, a cozy blanket, your best tiara, and maybe even a cute teddy bear to cuddle with while I explain just how much Princess Affliction means to me, and how much ALL of you mean to me!💖  (I’ll just give ya a heads up, this story is a long one… Sorry😅)

I have wanted to start this blog for a while, almost a year if we’re getting into specifics. I first got the idea for Princess Affliction back in April of 2015, as I was dealing with excruciating CRPS pain that went active after a laberal tear in my hip. The CRPS pain was even worse than when I was first diagnosed with it in 2009 when I broke my wrist. There were days where I couldn’t leave my bed because the pain in my hip was so bad. While laying there, looking at my turquoise colored walls, I wondered how many people experience the same pain I do, even if it’s not CRPS like I have, but other chronic pain conditions and illnesses that make it hard to even be your self. That’s when I decided I wanted to start a blog. I know there are so many people out there who experience chronic pain and illnesses that make it hard to be yourself and have a life other than laying in bed and watching Disney movies. (Though I do really love watching Disney movies and recommend them to seriously EVERYONE.) I want to tell everyone out there fighting the battle of chronic pain and illness that there IS hope. Now, you maybe wondering why I didn’t start Princess Affliction when I had the idea. Well, it was rough for me. My CRPS got worse, and I visited countless chronic pain clinics at Children’s Hospitals to help the pain. The pain got so bad that I lost hope in ever being the pain free, happy girl I was before. Sadly, I got totally distracted from achieving my goals of beginning Princess Affliction. Then, I began to turn the corner. A chronic pain doctor from Children’s put me on a Clonodine medicine patch to manage the pain, and miraculously the pain began to decrease. I remember being so happy that I cried. I made it to school for 3 moths being the happy girl I remember, I was pain free. Then the day of December 3rd came, and a migraine like I have never had before arose. I was unable to leave my bed for 3 days before my mom decided we needed to go into the ER. In the past, when I would get terrible migraines, an ER visit would help completely take the pain away and keep it away for a good month or so, but when I went in this time, the IV cocktail they gave me brought the head pain from a 10 to a 4. I didn’t care then that it was only a 4, I was just so relieved to not be in excruciating pain. It wasn’t until the next day the monstrous pain returned and I was back up to a pain level of 8. This began the endless and tiring cycle of going from neurologist after neurologist, and being in the ER 1-2 times a week, just to figure out why it wasn’t going away. So many doctors believed it all to be a psychological problem because they couldn’t understand why the pain wouldn’t go away. It was six months later, after sending in a hair analysis to a local neuropathic doctor near I live, that I was diagnosed with Lymes Disease. Getting this diagnoses really helped me know that I wanted to start Princess Affliction, because I have come to realize over this 2 year journey that there are so many people out there with chronic pain and illnesses that deserved to be heard and supported. Sometimes it’s hard to fight this battle, so what better way to fight the battle not just with people by your side, but with Princesses and prince’s by your side who all understand the hardship of the fight.

Thank you for reading this forever long blog post, it means so much to me that you are willing to read my story, because all I wish for is that you will be supported by the amazing princesses and prince’s in this community and in return support me.

And one last thing! I know it’s hard to imagine being pain free when some days you can’t even leave your bed- because trust me, I know what it’s like to feel hopeless and that the pain will never end- but there is joy in tomorrow. I promise. So keep fighting my princesses and princes. This pain and illness is not who you are, it’s making you a stronger version of you.

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Love,

Princess Affliction